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First published online June 14, 2013

Conceptualizing Lay Participation in Professional Health Care Organizations

Abstract

Lay participation in health care decision making lacks an adequate analysis from an organizational perspective. This article aims to develop conceptual devices to analyze policies and practices and the ways in which these could be further developed. By recapping established frameworks and drawing on theories of professional organizations, four participatory roles and their potential to adapt organizational decisions to internal requirements and external challenges are elaborated. While individual patient participation is widely acknowledged, there is still a lack of systematic approaches to the roles of significant others, patient groups, and the broader community and their implementation within health care organizations.

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Biographies

Benjamin Marent is a postdoctoral researcher at the Ludwig Boltzmann Institute Health Promotion Research in Vienna. He studied in Vienna and London and earned his PhD (in 2012) in sociology at the University of Vienna with an analysis of participatory health promotion. His main areas of research comprise user and community participation, health promotion, organization theory, and communication theory. His most recent publication is Marent, B., Forster, R., & Nowak, P. (2012). Theorizing participation in health promotion: A literature review. Social Theory Health, 10, 188-207.
Rudolf Forster is professor of sociology at the Institute of Sociology, University of Vienna, and key researcher in the area of user and community participation at the Ludwig Boltzmann Institute Health Promotion Research in Vienna. He earned his PhD in psychology at the University of Vienna. His main areas of publication and research comprise participation and health promotion in organizational settings, patient organizations’ engagement in health care, and policy. His recent publications comprise the following: (a) Forster, R., Braunegger-Kallinger, G., & Krajic, K. (2011). Austrian Health Consumer Groups—Voices Gaining Strength? In H. Löfgren, E. De Leeuw, & M. Leahy (Eds.), Democratizing Health: Consumer Groups in the Policy Process (pp. 143-160), Cheltenham, UK, Northampton, MA, USA: Edward Elgar Publishing; and (b) Forster, R., & Gabe, J., (2008). Voice or choice? Patient and public involvement in the national health service in England under new Labour, International Journal of Health Services, 38, 333-356.
Peter Nowak was senior researcher and assistant director of the Ludwig Boltzmann Institute Health Promotion Research in Vienna, and is now Head of Unit for Science, Research, and Evaluation, GesundheitÖsterreich GmbH. He is also a lecturer at the Institute for Sociology, University of Vienna, and the Medical University of Graz. He earned his PhD in linguistics at the University of Vienna with a meta-study on the systematics of doctors’ communicative actions. His main areas of publication and research comprise doctor–patient communication, health promotion in hospitals, integrated care, quality improvement in hospitals, patient-centered care and patient participation, and empowerment. His most recent publications comprise the following: (a) Mager, U., & Nowak, P. (2012). Effects of student participation in decision making at school. A systematic review and synthesis of empirical research. Educational Research Review, 7, 38-61; and (b) Nowak, P. (2011) Synthesis of qualitative linguistic research—A pilot review integrating and generalizing findings on doctor–patient interaction. Patient Education & Counseling, 82, 429-441.

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Article first published online: June 14, 2013
Issue published: September 2015

Keywords

  1. lay participation
  2. health care organization
  3. patient participation
  4. public participation
  5. decision making

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Benjamin Marent
Ludwig Boltzmann Institute Health Promotion Research, Vienna, Austria
Rudolf Forster
Ludwig Boltzmann Institute Health Promotion Research, Vienna, Austria
Institute of Sociology, University of Vienna, Austria
Peter Nowak
Ludwig Boltzmann Institute Health Promotion Research, Vienna, Austria

Notes

Benjamin Marent, Ludwig Boltzmann Institute Health Promotion Research, Ludwig Boltzmann Gesellschaft GmbH, Untere Donaustraße 47, 1020 Vienna, Austria. Email: [email protected]

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