Family Caregivers' Future Planning for Younger and Older Adults With Serious Mental Illness (SMI)
Abstract
This study examines plans for future caregiving made by family members of younger (n = 59) and older adults (n = 16) with serious mental illness (SMI). An online survey was advertised through a newsletter of the National Alliance on Mental Illness. Qualitative analyses yielded four areas of caregiver concern: health of the care recipient over time, ability of caregivers to sustain support, social support available for the care recipient, and financial burden of care. Despite these concerns, few caregivers reported completed plans for future caregiving. One fourth of the caregivers had made no plans, nor had they discussed future caregiving with others. Although most would prefer other relatives to assume care in the event they could not sustain support, these expectations may not be communicated openly. Generating discussion on this pertinent topic has implications for the aging society regarding how best to care for those with SMI and their caregivers.
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References
Beeler, J., Rosenthal, A., & Cohler, B. (1999). Patterns of family caregiving and support provided to older psychiatric patients in long-term care. Psychiatric Services, 50(9), 1222-1224.
Biegel, D.E., & Schulz, R. (1999). Caregiving and caregiver interventions in aging and mental illness. Family Relations, 48, 345-354.
Bulger, M.W., Wandersman, A., & Goldman, C.R. (1993). Burdens and gratifications of caregiving: Appraisal of parental care of adults with schizophrenia. American Journal of Orthopsychiatry, 63(2), 255-265.
Cohen, C.I. (2003). Social vicissitudes of schizophrenia in later life. In C. I. Cohen (Ed.), Schizophrenia into later life: Treatment, research, and policy (pp. 155-159). Arlington, VA: American Psychiatric Publishing.
Cohen, C.I., & Kochanowicz, N. (1989). Schizophrenia and social network patterns: A survey of black inner-city outpatients. Community Mental Health Journal, 25(3), 197-207.
Cohler, B.J., Pickett, S.A., & Cook, J.A. (1991). The psychiatric patient grows older: Issues in family care. In E. Light & B. D. Lebowitz (Eds.), The elderly with chronic mental illness (pp. 82-110). New York: Springer .
Cook, J.A., Cohler, B.J., Pickett, S.A., & Beeler, J.A. (1997). Life-course and severe mental illness: Implications for caregiving within the family of later life. Family Relations, 46, 427-436.
Cook, J.A., Lefley, H.P., Pickett, S.A., & Cohler, B.J. (1994). Age and family burden among parents of offspring with severe mental illness. American Journal of Orthopsychiatry, 64(3), 435-447.
Doornbos, M.M. (1997). The problems and coping methods of caregivers of young adults with mental illness. Journal of Psychosocial Nursing, 35(9), 22-26.
Doornbos, M.M. (2002). Family caregivers and the mental health system: Reality and dreams. Archives of Psychiatric Nursing, 14(1), 39-46.
Foldemo, A., Gullberg, M., Ek, A., & Bogren, L. (2005). Quality of life and burden in parents of outpatients with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 40(2), 133-138.
Greenberg, J.S., Seltzer, M.M., Krauss, M.W., & Kim, H.W. (1997). The differential effects of social support on the well-being of aging mothers of adults with mental illness and mental retardation . Family Relations, 46, 383-394.
Harvey, P.D. (2005). Schizophrenia in late life: Aging effects on symptoms and course of illness. Washington, DC: American Psychological Association.
Hatfield, A.B., & Lefley, H.P. (2000). Helping elderly caregivers plan for the future care of a relative with mental illness. Psychiatric Rehabilitation Journal, 24(2), 103-107.
Hatfield, A.B., & Lefley, H.P. (2005). Future involvement of siblings in the lives of persons with mental illness. Community Mental Health Journal, 41(3), 327-338.
Holmberg, S.K., & Kane, C. (1999). Health and self-care practices of persons with schizophrenia. Psychiatric Services, 50(6), 827-829.
Kim, H.W., Greenberg, J.S., Seltzer, M.M., & Krauss, M.W. (2003). The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness . Journal of Intellectual Disability Research, 47(4), 313-327.
Lefley, H.P. (1996). Family caregiving in mental illness. Thousand Oaks, CA: Sage.
Lefley, H.P., & Hatfield, A.B. (1999). Helping parental caregivers and mental health consumers cope with parental aging and loss. Psychiatric Services, 50(3), 369-375.
Meeks, S., Carstensen, L.L., Stafford, P.B., Brenner, L.L., Weathers, F., Welch, R., et al. (1990). Mental health needs of the chronically mentally ill elderly. Psychology and Aging, 5(2), 163-171.
Meeks, S., & Hammond, C.T. (2001). Social network characteristics among older outpatients with long-term mental illness. Journal of Mental Health and Aging, 7(4), 445-464.
Molinari, V., Merritt, S., Mills, W., Chiriboga, D., Conboy, A., Hyer, K., et al. (in press). Serious mental illness in Florida nursing homes: Interviews with stakeholders. Gerontology and Geriatrics Education .
National Alliance for Caregiving and AARP. ( 2004). Caregiving in the U.S. Westport, CT : MetLife Mature Market Institute.
National Alliance on Mental Illness. (2005 ). About advocate. Retrieved November 12, 2006, from http://www.nami.org/ADVTemplate.cfm?Section=About_Advocate
Obloy, C., & Hutcheson, S. (2002). Planned Lifetime Assistance Network: A new services model with promising results. Psychiatric Rehabilitation Journal, 25(4), 409-412.
Rose, L.E. (1996). Families of psychiatric patients: A critical review and future research directions. Archives of Psychiatric Nursing, 10(2), 67-76.
Rose, L.E., Mallinson, R.K., & Gerson, L.D. (2006). Mastery, burden, and areas of concern among family caregivers of mentally ill persons. Archives of Psychiatric Nursing, 20(1), 41-51.
Seltzer, M.M., Greenberg, J.S., & Krauss, M.W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness and mental retardation. Psychology and Aging, 10(1), 64-75.
Semple, S.J., Patterson, T.L., Shaw, W.S., Grant, I., Moscona, S., Koch, W., et al. (1997). The social networks of older schizophrenia patients. International Psychogeriatrics, 9(1), 81-94.
Smith, G.C. (2004). Predictors of the stage of residential planning among aging families of adults with severe mental illness. Psychiatric Services, 55(7), 804-810.
Smith, G.C., Tobin, S.S., & Fullmer, E.M. (1995). Elderly mothers caring at home for offspring with mental retardation: A model of permanency planning. American Journal of Mental Retardation, 99, 487-499.
Tucker, C., Barker, A., & Gregoire, A. (1998). Living with schizophrenia: Caring for a person with a severe mental illness. Social Psychiatry and Psychiatric Epidemiology, 33(7), 305-309.
Webb, C., Pfeiffer, M., Mueser, K.T., Gladis, M., Mensch, E., DeGirolamo, J., et al. (1998). Burden and well-being of caregivers for the severely mentally ill: The role of coping style and social support. Schizophrenia Research, 34(3), 169-180.
Wittmund, B., Wilms, H.U., Mory, C., & Angermeyer, M.C. (2002). Depressive disorders in spouses of mentally ill patients. Social Psychiatry and Psychiatric Epidemiology, 37(4), 177-182.
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Article first published online: May 6, 2008
Issue published: August 2008
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This article was published in Journal of Applied Gerontology.
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