Aging in Place Through the COVID-19 Pandemic: Perspectives from Aging Service Providers
Abstract
What this paper adds
Applications of study findings
Methods
Café 1: Identifying environmental factors and issues |
1. What environmental factors have positively impacted experiences of aging in place during the pandemic? |
2. What concerns have been brought to light as a result of the pandemic for older adults' ability to age in the “right” place? |
3. What post-pandemic needs do older adults have that are critical to address? |
Café 2: Dreaming and envisioning future change |
1. What environmental barriers in the context of technology & digital resources / social connection & mental health / home safety & emergency preparedness have negatively impacted aging in place during the pandemic? |
2. What environmental changes do you envision to be necessary to support how technology & digital resources / social connection & mental health / home safety & emergency preparedness can positively impact aging in the “right” place in the future? |
3. How can visions for change improve aging in the “right” place and make significant social impacts? |
Café 3: Feedback, funding, and future strategies |
1. As you look ahead to how technology & digital resources / social connection & mental health / home safety & emergency preparedness supports aging in the “right” place, what are your primary concerns around gaps in current funding and resources? |
2. What future trajectories for funding in support of technology & digital resources / social connection & mental health / home safety & emergency preparedness can we target collaboratively between service providers and the university? |
3. How might those collaborative opportunities be supported by future, academic research endeavors? |
Results
What has positively impacted AIP during the pandemic? | What concerns for AIP have emerged during the pandemic? | What future needs are critical to address to support AIP? |
---|---|---|
“Making more with less”: existing services and resources were amplified and adapted to respond to new needs, conditions, and barriers | “There was no plan for the pandemic”: “physical distancing stretched resources further”; information roll-out was confusing and often contradictory | “Designing the reconnect” to mend social and family bonds that were disrupted; addressing fears that are associated with social interactions |
Remote working offered greater flexibility to many aging-service providers and caregivers; remote working also enabled some older adults remain in the workforce | Ability to meet basic needs has become more challenging: “our most vulnerable population is worried about just food sufficiency; they are worried about shelter over their heads of any kind” | Expanding hybrid platforms to make resources available without total reliance on technology; investing in resources that promote tech literacy and use among older adults; simplifying interfaces with tech |
AIP has become more appealing to older adults, caregivers, and service providers given infection rates and deaths seen in congregate living; AIP at home offers “a little bit more protection…health wise” | Digital literacy and access vary widely among older adults; the switch to online services and platforms cuts many people off: “different people require different communication approaches” | Addressing delayed care in mental and physical health needs; addressing lack of care options for mental and physical health, particularly in rural and underserved areas |
Home-based services expanded and were beneficial to homebound older adults or those lacking transportation options; concept of “the more you can bring to an individual the better” is supported by uptick in telehealth, prescription and grocery delivery, etc | Social isolation and loneliness are amplified as vulnerabilities to well-being; “Social isolation had a very strong impact on people’s mental health”; loneliness is thought to contribute to the disproportionate number of older adults who passed away in 2020–21 to non-COVID causes | Overhauling emergency preparedness planning and measures; making real-time, accurate news and information more accessible; recognizing the need for back up plans that address overlapping and simultaneous crises |
Emergency response funds allowed providers to meet community needs in creative and efficient ways and at a quicker rate than under normal circumstances | Economic, geographic, and cultural barriers made accessing basic needs harder (i.e., safe housing, tech, preventive care, transportation, home safety equipment/modification, nutritious food, clean drinking water, and quality caregivers) | Promoting equitable and inclusive aging service by creating better awareness of cultural and language differences; need to address ageism and stigmas toward aging in broader social contexts |
Technology Access and Digital Literacy | Social Isolation and Mental Health | Emergency Preparedness and Home Safety |
---|---|---|
Tech-centric solutions have bridged gaps but also left people behind; older adults with limited digital literacy, access, income, and infrastructure are particularly at risk of being disadvantaged and marginalized by the uptick in technology use | Support for social isolation and mental health is often limited and challenging for older adults to access; caregivers need social and mental health support in order to contribute to AIP; access is particularly limited in rural and underserved areas, and challenging for non-English speakers | Emergency response revealed systemic vulnerabilities that underlie AIP; the lack of coordination between information and policies on local/state/federal levels exacerbated challenges; the lack of having back up plans in place contributed to the struggle to support older adults’ AIP |
“Technology is a two-edged sword; for many people, (it) expanded options for connecting with people and there were lots of virtual options and ability to connect through technology; but the individuals who don't have technology or are not tech savvy...that is obviously a bigger issue along with the issue of just Internet access. We have people particularly in rural areas that may have access to technology, but don't have the Internet capacity in in their particular area at least not on the level that they that they need.” | “I just wanted to speak from the perspective of the senior because I walked through this with them every day and what I found is my seniors who were receiving services in offices for mental health support were cut off from those offices…the seniors that I work with…are low- income, a lot of them are not highly educated and they struggle with technology...so even switching over to telehealth technology was incredibly difficult; a lot of them don’t have emails to even have a link sent to. I did a lot of navigating this for them so they could be connected to their providers. Some people just gave up” | “So many people didn't have situations in place where they could be home and be safe without being connected to resources. Being part of the County, we worked with the state on emergency response when COVID first happened of how to keep seniors in their homes, so they could...stay safe at home. We had a lot of people (who) didn't have a refrigerator at home, like they relied on always having food accessible at senior centers or going out and so like we had to buy some mini fridges...there's just a lot of people who rely on day to day operation and access to resources.” |
“Having groceries delivered and figuring out how to use that whole (online ordering) system was super helpful (but) a lot of people don't know how to do that. We had a food pantry.but people were scared to leave, and some people don't have access to transportation so we tried to get creative…to help us deliver from our food pantry to people who needed it. But it was hard to find those people; it was hard to find who was kind of slipping through the cracks and who needed more assistance.” | “What I'm seeing is a lot of fear and so how we help face those fears and integrate back to society. You know seniors (who) don't want to go back to the center, (who) were social beforehand, and would participate in a lot of activities and volunteer. And now they're just afraid of what will happen. And that fear has taken over everything for them and (they’re) just stuck such a fearful place, and so how to approach that and help them move forward.” | “I certainly wasn’t comfortable with the way they handled (emergency response measures) here…because they left the decision- making up to the individual governing districts instead of making things more universal…I mean when the state epidemiologist comes out and makes a statement and then the local authorities don’t follow her statements or recommendations, that’s a problem!” |
“There are some groups that need that human connection.and so we can't just throw all of our eggs into the tech basket and say, well, these one offs will be able to work with those.” | “I noticed a lot of our caregivers avoided getting the extra help in the home that they needed because they were afraid to have someone else come in their house. The lack of social connection really sped up for a lot of people the progression of their loved ones’ disease and we had a lot more deaths in our in our group. I think that really just sped up the deterioration, not having that” | “Calling and not getting somebody that speaks your language… that's always a big barrier, especially with immigrant and refugee communities that are already not comfortable reaching out to emergency services personnel; the language barrier can just add more to that experience and can affect it negatively even more.” |
Address gaps in technology access and literacy through a variety of robust partnerships “We need to build a really robust service industry of IT partners... We provide health advocates, we provide legal advocates, people who can help walk (older adults) through, but now what we really need is an IT partner, whether it's a family member, a close friend, a volunteer that just not related, who can virtually or on occasion, side by side, help our older adult population navigate the content that's on the web.” |
Promote training and awareness among caregivers for addressing mental health needs of older adults “Training people who provide services for (older adults), whether the personal caregivers or their professional caregivers…to identify the symptoms of loneliness, isolation, depression, anxiety--that’s something that's really concerned me. We may have another opportunity to be able to do this and possibly do it in a more effective way for the older adult population. And the question of who do you report it to and you know who do you tell that they're not having eaten for 3 days and what does that mean? I think that a lot of that has to do with the identification of anxiety and some of it…has to do with the caregivers as well. They have to be aware of those situations and they really need to be trained and schooled (on) how to deal with those (situations) and I don't know that we're doing that yet.” |
Create greater empathy and understanding for emergency response situations that older adults face “Unless a legislator or someone else has had a particular family member or parent or older adult in their sphere that has experienced this type of homelessness or difficulty or thing, it's often probably for them very tough to empathize with that particular group of individuals.” |
Build cultural capacity and diversity to “keep older adults in their homes [because it] strengthens community” “It's an overhauling of our mindset. Basically it's looking at things through a different worldview. I bet that if we pulled up emergency response teams for the state of Utah, we would be looking at a mostly white demographic, right? I think in order for aging folks to age in the right place, we need to have some sort of pipeline into these careers for. Members of diverse communities, right? I think people just feel safer sometimes being surrounded by people that look like you that might have had experiences similar to yours. Like when vets can identify one another if they were in the hats or carrying medals, or they're wearing a certain type of jacket. Sometimes you just need that sense of community and in knowing that things are going to be OK. You know, if people that were giving home safety classes spoke about things in a different way. If they looked at different things like multi generational households, so you have a, say, Asian American household Pacific Islander household. There's going to be, say, 10 family members in that household. OK, so how do we identify emergency exits in that situation? You know, how do we work with what is available? Just knowing that these are some different realities…that's the big social impact, just overhauling our mindset on how we do certain things, and what perspectives are valid.” |
Strengthen information and resources for caretakers and providers “I think what we learned from this pandemic is that we need to have a lot more mechanisms to roll out information and resources to people who are quote-unquote difficult to reach or who have limited access. And that’s technology and that’s transportation and that’s information from policy makers and it’s all those things” |
Amplify existing services through public–private partnerships “There has to be a profit angle, whether it's in-house, or technology, or anything else. So the partnership is very real between public and private (in) how can we incentivize private ownership, private industry, to, through government, either subsidy incentive discounts, whatever it may be, that will drive them to do that it's not any different about providing affordable internet, for example, as it is for somebody trying to find affordable repairs to a home to aging in place. These are all things where contractors, if they don't have the funds, it's really a tough nudge out of benevolence, right?” |
Technology and Digital Resources: “A Common Right”
There’s a lot of money going out into infrastructure right now…to build up the infrastructure of the broadband, all of that stuff. But it’s got to be affordable, and some of the programs out there right now are only short-term, like vouchers…to get access. We’ve got to have long-term access that’s really accessible; another great debate and public policy in the future of what is (and) should be a common right, kind of like we argue about health care how much you pay for and how much you should have access to; well, technology, I think is going to fall in that as well—the right to be able to connect the airwaves to get to stuff.—Participant
Social Isolation and Mental Health: “Making it Personal”
Taking these personal stories of individuals who are struggling and who have been left behind because of the current climate and…making it personal for these policymakers who may not have individuals in their family who are struggling, homeless, and economically disadvantaged, and really facilitating these connections between these policymakers and these older adults so that we can have increased understanding and then have that policy, which is really how we begin to change.—Participant
Emergency Preparedness and In-home Security: “There was no Plan for the Pandemic”
What happens if the caregiver (to an older adult) has an emergency and they have to go to the hospital? Do they have people they can call in to come be with their loved one with dementia? Do they have neighbors nearby? Do they have organizations…walking them through? All these different scenarios…Everyone has these little webs of people and (yet) I think it's hard to think about these scenarios clearly.—Participant
Discussion
Conclusion
Acknowledgments
Declaration of Conflicting Interests
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