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Abstract
In 2007, a 4-year longitudinal study of all people admitted to the two New Zealand spinal units commenced. It aims to (a) explore interrelationship(s) of body, self, and society for people with spinal cord injury (SCI) and (b) investigate how entitlement to rehabilitation and compensation through New Zealand’s Accident Compensation Corporation affects socioeconomic and health outcomes. Working within the emancipatory-transformative research paradigm, an underlying aim was to build research capacity among people with SCI by recruiting them onto the research team (in addition to the principal investigator who has a SCI). The primary focus of this article is not on the findings of the study but on building research capacity in the SCI population of New Zealand, which emerged from our commitment to the study being ethical and emancipatory. This will involve a consideration of what constitutes ethical disability research, the research paradigm chosen, assembling the research team, and the flexibility provided by the use of mixed methods to achieve these ends.
References
Section:
|
Barnes, C., Mercer, G. (Eds.). (1997). Doing disability research. Leeds, England: Disability Press. Google Scholar | |
|
Barnes, C., Mercer, G. (Eds.). (2004). Implementing the social model of disability: Theory and practice. Leeds, England: Disability Press. Google Scholar | |
|
Bourke, J. (2012). The experience of rehabilitation from the perspectives of individuals in New Zealand with tetraplegia due to traumatic spinal cord injury (SCI) (Unpublished master’s thesis). University of Otago, Dunedin, New Zealand. Google Scholar | |
|
Charlton, J. (1998). Nothing about us without us: Disability oppression and empowerment. Berkeley: University of California Press. Google Scholar | Crossref | |
|
Curry, L., O’Cathain, L., Plano Clark, V., Aroni, R., Fetters, M., Berg, D. (2012). The role of group dynamics in mixed methods health sciences research teams. Journal of Mixed Methods Research, 6(1), 5-20. Google Scholar | SAGE Journals | ISI | |
|
Derrett, S., Beaver, C., Sullivan, M., Herbison, P., Acland, R., Paul, C. (2012). Traumatic and non-traumatic spinal cord impairment in New Zealand: Incidence and characteristics of people admitted to spinal clinics. Injury Prevention, 18, 343-346. doi:10.1136/injuryprev-2011-040266 Google Scholar | Crossref | Medline | ISI | |
|
Derrett, S., Colhoun, S. (2011). Being a quantitative interviewer: Qualitatively exploring interviewers’ experiences in a longitudinal cohort study. BMC Medical Research Methodology, 11, 165. doi:10.1186/1471-2288-11-165 Google Scholar | Crossref | Medline | ISI | |
|
Gill, C. J., Kewman, D. G., Brannon, R. W. (2003). Transforming psychological practice and society. American Psychologist, 58, 305-312. Google Scholar | Crossref | Medline | ISI | |
|
Gómez, A., Puigvert, L., Flecha, R. (2011). Critical communicative methodology: Informing real social transformation through research. Qualitative Inquiry, 17, 235-245. Google Scholar | SAGE Journals | ISI | |
|
Goodley, D. (2001). “Learning difficulties,” the social model of disability and impairment: Challenging epistemologies. Disability & Society, 16, 207-231. Google Scholar | Crossref | ISI | |
|
Hemmings, A., Beckett, G., Kennerly, S., Yap, T. (2013). Building a community of research practice: Intragroup team social dynamics in interdisciplinary mixed methods. Journal of Mixed Methods Research, 7(3), 261-273. Google Scholar | SAGE Journals | ISI | |
|
Hunt, P. (1981). Settling accounts with the parasite people. Disability Challenge, 1, 37-48. Retrieved from http://disability-studies.leeds.ac.uk/files/library/UPIAS-Disability-Challenge1.pdf Google Scholar | |
|
Mertens, D. M. (2005). Research and evaluation in education and psychology (2nd ed.). Thousand Oaks, CA: Sage. Google Scholar | |
|
Mertens, D. M. (2007). Transformative paradigm: Mixed methods and social justice. Journal of Mixed Methods Research, 1(3), 212-225. Google Scholar | SAGE Journals | ISI | |
|
Mertens, D. M. (2011). Mixed methods as tools for social change. Journal of Mixed Methods Research, 5(3), 195-197. Google Scholar | SAGE Journals | ISI | |
|
Mertens, D. M., Sullivan, M., Stace, H. (2010). Disability communities. Transformative research for social justice. In Denzin, N. K., Lincoln, Y. S. (Eds.), Handbook of qualitative research (4th ed., pp. 227-241). Thousand Oaks, CA: Sage. Google Scholar | |
|
Oliver, M. (1992). Changing the social relations of research production. Disability & Society, 7, 101-114. Google Scholar | Crossref | |
|
Oliver, M. (1996). Understanding disability: From theory to practice. Basingstoke, England: Macmillan. Google Scholar | Crossref | |
|
Paul, C., Derrett, S., McAllister, S., Herbison, P., Beaver, C., Sullivan, M. (2013). Socioeconomic outcomes following spinal cord injury and the role of no-fault compensation: Longitudinal study. Spinal Cord, 51, 919-925. doi:10.1038/sc.2013.110 Google Scholar | Crossref | Medline | ISI | |
|
Sullivan, M. (1997). Paraplegic bodies: Self and society (Unpublished doctoral dissertation). University of Auckland, New Zealand. Google Scholar | |
|
Sullivan, M. (2009). Philosophy, ethics and the disability community. In Mertens, D. M., Ginsberg, P. E. (Eds.), The handbook of social research ethics (pp. 69-84). Thousand Oaks, CA: Sage. Google Scholar | Crossref | |
|
Sullivan, M., Paul, C., Herbison, G., Tamou, P., Derrett, S., Crawford, M. (2010). A longitudinal study of the life histories of people with spinal cord injury. Injury Prevention, 16(6), e3. Google Scholar | Crossref | ISI | |
|
van den Heuvel, M. (2012). Lived experience of managing paid personal care following a spinal cord injury: An interpretative phenomenological analysis (Unpublished master’s thesis). University of Otago, Dunedin, New Zealand. Google Scholar |
