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Abstract
The objective of this study was twofold: First, to conduct a confirmatory factor analysis of the Portuguese versions of Disabkids-10; and second, to examine potential differences in factor structures between age-groups, genders, and informants. The sample included 293 school-aged children and adolescents with chronic health conditions and 197 parents. Both family members (whenever possible) completed the self- and proxy-report versions of Disabkids-10. The factorial model of Disabkids-10 had good fit for self-reported data and minimally acceptable fit for proxy-reported data. The multigroup analyses confirmed the model invariance across age-groups (children vs. adolescents), genders (boys vs. girls), and informants (children vs. parents). The generic developmental applicability of these questionnaires makes them recommended for health care routine assessments on pediatric intervention needs and outcomes.
References
|
Aaronson, NK, Meyerowitz, BE, Bard, M. (1991) Quality of life research in oncology: Past achievements and future priorities. Cancer 67(3): 839–843. Google Scholar | Crossref | Medline | ISI | |
|
Atkinson, TM, Rosenfeld, BD, Sit, L. (2011) Using confirmatory factor analysis to evaluate construct validity of the Brief Pain Inventory (BPI). Journal of Pain and Symptom Management 41(3): 558–565. Google Scholar | Crossref | Medline | ISI | |
|
Browne, M, Cudeck, R (1993) Alternative ways of assessing model fit. In: Bollen, K, Long, J (eds.) Testing Structural Equation Models. Newbury Park, CA: Sage, pp. 136–162. Google Scholar | |
|
Bruil, J, Detmar, SB (2005) Measuring health-related quality of life in children: Difficulties and challenges. Expert Review of Pharmacoeconomics and Outcomes Research 5(5): 511–514. Google Scholar | Crossref | Medline | |
|
Bullinger, M, Schmidt, S, Petersen, C. (2006) Quality of life: Evaluation criteria for children with chronic conditions in medical care. Journal of Public Health 14(6): 343–355. Google Scholar | Crossref | |
|
Byrne, BM (2010) Structural Equation Modeling with AMOS: Basic Concepts, Applications, and Programming (2nd ed.). New York, NY: Routledge. Google Scholar | |
|
Carona, C, Bullinger, M, Canavarro, MC (2011) Assessing paediatric health-related quality of life within a cross-cultural perspective: Semantic and pilot validation study of the Portuguese versions of DISABKIDS-37. Vulnerable Children & Youth Studies 6(2): 144–156. Google Scholar | Crossref | |
|
Carona, C, Crespo, C, Silva, N. (2013) Examining a developmental approach to health-related quality of life assessment: Psychometric analysis of DISABKIDS generic module in a Portuguese sample. Vulnerable Children & Youth Studies 8(3): 243–257. Google Scholar | Crossref | |
|
Cheung, GW, Rensvold, RB (2002) Evaluating goodness-of-fit indexes for testing measurement invariance. Structural Equation Modeling 9(2): 233–255. Google Scholar | Crossref | ISI | |
|
Christakis, DA, Johnston, BD, Connell, FA (2001) Methodologic issues in pediatric outcomes research. Ambulatory Pediatrics 1(1): 59–62. Google Scholar | Crossref | Medline | |
|
Clarke, SA, Eiser, C (2004) The measurement of health-related quality of life (QOL) in paediatric clinical trials: A systematic review. Health and Quality of Life Outcomes 2: 66–70. Google Scholar | Crossref | Medline | |
|
Gerharz, EW, Eiser, C, Woodhouse, CRJ (2003) Current approaches to assessing the quality of life in children and adolescents. British Journal of Urology International 91(2): 150–154. Google Scholar | Crossref | |
|
Hair, JF, Black, WC, Babin, BJ. (2010) Multivariate Data Analyses (7th ed.). Upper Saddle River, NJ: Prentice Hall. Google Scholar | |
|
Hu, L, Bentler, PM (1999) Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling 6(1): 1–55. Google Scholar | Crossref | ISI | |
|
Koot, HM (2001) The study of quality of life: Concepts and methods. In: Koot, HM, Wallander, JL (eds.) Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings. New York, NY: Taylor and Francis, pp. 3–20. Google Scholar | |
|
Koot, HM, Wallander, JL (2001) Challenges in child and adolescent quality of life research. In: Koot, HM, Wallander, JL (eds.) Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings. New York, NY: Taylor and Francis, pp. 431–456. Google Scholar | |
|
Lei, P, Wu, Q (2007) Introduction to structural equation modeling: Issues and practical considerations. Educational Measurement: Issues and Practice 26(3): 33–43. Google Scholar | Crossref | |
|
Muehlan, H (2010) Developing the DCGM-12: A short-form of the DISABKIDS condition-generic module assessing health related quality of life in children and adolescents with chronic conditions. PhD Thesis, University of Hamburg, Germany. Available at: http://ediss.sub.uni-hamburg.de/volltexte/2010/4923/pdf/DISS_HM_DCGM12_FIN_UPLOAD.pdf (accessed 21 March 2013). Google Scholar | |
|
Passa, P (2002) Diabetes trends in Europe. Diabetes/Metabolism Research and Reviews 18(3): S3–S8. Google Scholar | Crossref | Medline | ISI | |
|
Raina, P, O’Donnell, M, Schwellnus, H. (2004) Caregiving process and caregiver burden: Conceptual models to guide research and practice. BioMed Central Pediatrics 4: 1. Google Scholar | |
|
Rajmil, L, Herdman, M, Sanmamed, MF. (2004) Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health 34(1): 37–45. Google Scholar | Crossref | Medline | ISI | |
|
Ravens-Sieberer, U, Erhart, M, Rajmil, L. (2010) Reliability, construct and criterion validity of the KIDSCREEN-10 score: A short measure for children and adolescents’ well-being and health-related quality of life. Quality of Life Research 19(10): 1487–1500. Google Scholar | Crossref | Medline | ISI | |
|
Ronen, GM, Streiner, DL, Rosenbaum, P (2003) Health-related quality of life in childhood epilepsy: Moving beyond seizure control with minimal adverse effects. Health and Quality of Life Outcomes 1: 36–46. Google Scholar | Crossref | Medline | |
|
Seid, M, Yu, H, Lotstein, D. (2005) Using health-related quality of life to predict and manage pediatric health care. Expert Review of Pharmacoeconomics and Outcomes Research 5(4): 489–498. Google Scholar | Crossref | Medline | |
|
Simões, M (1994) Investigações no âmbito da aferição nacional do teste das Matrizes Progressivas de Raven [Raven’s Progressive Matrices: Aferition studies]. PhD Thesis, University of Coimbra, Portugal. Google Scholar | |
|
Söderbäck, M, Coyne, I, Harder, M (2011) The importance of including both a child perspective and the child’s perspective within health care settings to provide truly child-centred care. Journal of Child Health Care 15(2): 99–106. Google Scholar | SAGE Journals | ISI | |
|
Spieth, LE, Harris, CV (1996) Assessment of health-related quality of life in children and adolescents: An integrative review. Journal of Pediatric Psychology 21(2): 175–193. Google Scholar | Crossref | Medline | ISI | |
|
Stanley, F, Blair, E, Alberman, E (2000) Cerebral palsies: Epidemiology and causal pathways. London: Mac Keith Press. Google Scholar | |
|
Suris, JC, Michaud, PA, Viner, R (2004) The adolescent with a chronic condition. Part I: Developmental issues. Archives of Disease in Childhood 89(10): 938–942. Google Scholar | Crossref | Medline | ISI | |
|
The European Disabkids Group (2006) The DISABKIDS Questionnaires: Quality of Life Questionnaires for Children with Chronic Conditions Handbook. Lengerich, Germany: Pabst Science Publishers. Google Scholar | |
|
Theunissen, NC, Vogels, TG, Koopman, HM. (1998) The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research 7(5): 387–397. Google Scholar | Crossref | Medline | ISI | |
|
Ullman, JB (1996) Structural equation modeling. In: Tabachnick, BG, Fidell, LS (eds.) Using Multivariate Statistics. New York, NY: Harper Collins College Publishers, pp. 709–819. Google Scholar | |
|
Varni, JW, Burwinkle, TM, Lane, MM (2005) Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application. Health and Quality of Life Outcomes 3: 34. Google Scholar | Crossref | Medline | |
|
Wallander, JL (2001) Theoretical and developmental issues in quality of life for children and adolescents. In: Koot, HM, Wallander, JL (eds.) Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings. New York, NY: Taylor and Francis, pp. 23–48. Google Scholar | |
|
Wallander, JL, Schmitt, M, Koot, HM (2001) Quality of life measurement in children and adolescents: Issues, instruments, and applications. Journal of Clinical Psychology 57(4): 571–585. Google Scholar | Crossref | Medline | ISI | |
|
Wee, HL, Chua, HX, Li, SC (2006) Meaning of health-related quality of life among children and adolescents in an Asian country: A focus group approach. Quality of Life Research 15(5): 821–831. Google Scholar | Crossref | Medline | ISI | |
|
Weston, R, Gore, PA (2006) A brief guide to structural equation modeling. The Counseling Psychologist 34(5): 719–751. Google Scholar | SAGE Journals | ISI | |
|
White-Koning, M, Arnaud, C, Dickinson, HO. (2007) Determinants of child–parent agreement in quality of life reports: A European study of children with cerebral palsy. Pediatrics 120(4): e804–e814. Google Scholar | Crossref | Medline | ISI | |
|
World Health Organization (1993) Measurement of Quality of Life in Children. Geneva, Switzerland: Division of Mental Health, WHO. Google Scholar |
